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SUPPORT ORGANIZATION FOR TRISOMY 18 TRISOMY 13 [1 record]
Record 1 - internal organization data 2017-07-18
Record 1, English
Record 1, Subject field(s)
- National Bodies and Committees (Canadian)
- Human Diseases
Record 1, Main entry term, English
- Support Organization for Trisomy 18, 13 & Related Disorders
1, record 1, English, Support%20Organization%20for%20Trisomy%2018%2C%2013%20%26%20Related%20Disorders
correct
Record 1, Abbreviations, English
- SOFT 2, record 1, English, SOFT
correct
Record 1, Synonyms, English
- Support Organization for Trisomy 18, Trisomy 13 2, record 1, English, Support%20Organization%20for%20Trisomy%2018%2C%20Trisomy%2013
correct
Record 1, Textual support, English
Record number: 1, Textual support number: 1 OBS
SOFT is a self-funded ... non-profit, volunteer organization incorporated in 1980. SOFT has helped families for over three decades and is recognized as a primary source of information about trisomy 18, 13 and related disorders. 3, record 1, English, - Support%20Organization%20for%20Trisomy%2018%2C%2013%20%26%20Related%20Disorders
Record number: 1, Textual support number: 2 OBS
SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and other related chromosomal disorders. Support can be provided during prenatal diagnosis, the child’s life and after the child’s passing. SOFT is committed to respect a family’s personal decision and to the notion of parent-professional relationships. 4, record 1, English, - Support%20Organization%20for%20Trisomy%2018%2C%2013%20%26%20Related%20Disorders
Record 1, French
Record 1, Domaine(s)
- Organismes et comités nationaux canadiens
- Maladies humaines
Record 1, Main entry term, French
- Support Organization for Trisomy 18, 13 & Related Disorders
1, record 1, French, Support%20Organization%20for%20Trisomy%2018%2C%2013%20%26%20Related%20Disorders
correct
Record 1, Abbreviations, French
- SOFT 2, record 1, French, SOFT
correct
Record 1, Synonyms, French
- Support Organization for Trisomy 18, Trisomy 13 2, record 1, French, Support%20Organization%20for%20Trisomy%2018%2C%20Trisomy%2013
correct
Record 1, Textual support, French
Record 1, Spanish
Record 1, Textual support, Spanish
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